Although we are starting to hear more and more about mental health, there is still not enough information available to parents when they need it the most. None of us wants to be the parent that needs these resources for our children, but if we or one of our friends do, we need to have the tools at our fingertips.
Here is one dad sharing his perspective when his daughter developed psychosis.
Beth was always a very lively person with a natural curiosity and strong will. Through the high school years she traded her social circle of brightly-spirited and mostly achievement-oriented friends for the low-spirited, drug and alcohol-abusing crowd. Her marks went from the 90’s to the 60’s, to incomplete classes, and in the end, high school was left unfinished. As parents we didn’t lose sight of the Beth that we used to have and hoped this teenage rebellion, laziness and emotional upheaval would pass (and soon, please!).
The first incident that marked a limit even we could not rationalize was a deep interest in God and spiritual connectedness. Another: Beth would talk to the police about someone “putting drugs in my drugs”. The police officer advised that we take her for blood tests at the hospital. As we drove, our daughter began to fill us in our other parts of her paranoid life (parking her car on different streets before walking to work; seeing familiar faces in unfamiliar places; being ruled by thoughts that she didn’t accept as her own; etc.) It didn’t take long for the skilled hospital staff to determine that care was needed, and with the assistance of a mild medication, Beth began to talk about things that were certainly not part of the world any of us related to.
The Phoenix Program had just started and we decided to refer Beth. It is a community service that specializes in early identification and treatment of psychosis. One of the challenges that we faced as parents was that we were in a very unfamiliar world and trying to navigate for ourselves, as well as for Beth, proved to be difficult. Beth has chosen to include us in many of her interactions with the Phoenix Team. Consequently we have been present in care meetings with all members of the multidisciplinary team. We were fortunate to have the Family Specialist and Schizophrenia Society’s Community Worker on hand to supply us with education, understanding, decision making and occasionally a shoulder to cry on.
The most helpful contribution for us as parents to cope was a direct contact inside the team who could balance Beth’s needs with ours. The most helpful contribution to Beth’s recovery was assistance with decision-making. Making good decisions requires insight and we saw Beth steadily exercise that mental pathway. By now I wonder if the whole world could use some of this – Beth makes decisions on a better platform than we do at times. She also does “reality checks” with the team – asking if her perception of the world is making sense or it if is influenced by her disease.
The best advice I can give is to make use of it (the care team). Talk openly, listen carefully and care for yourself.
Psychosis is one mental health issue that often gets portrayed incorrectly in movies and everyday conversations. This video describes the psychotic experience from a young man’s perspective.
Mental Illness Awareness Week is September 30 to October 6, 2012. The week seeks to:
- raise awareness of the level of mental illness in Canada
- reduce negative stigma about mental illness
- promote the positive effects of best practice in prevention, diagnosis and medical treatment.
For more tips and hints about mental health, or to share your experience, there are many ways you can talk to one of us directly:
- Leave us a comment below – we’d love your feedback
- Talk to us on Twitter: @haltonparents
- Email us at firstname.lastname@example.org
- Call the HaltonParents line for parenting information or to speak directly to a Public Health Nurse (every Monday to Friday from 8:30 a.m. to 4:30 p.m.) Simply dial 311 or 905-825-6000.
About these guest bloggers:
Milinda Alexander is the Coordinator of the Phoenix Program, Early Intervention Service and an Occupational Therapist. She works and travels between the 3 clinical sites (Milton, Oakville and Burlington) and links with other early intervention programs throughout Ontario.
Tony DiGiacomo is a mental health clinician/family specialist with the Phoenix Program at the North Halton Mental Health Clinic, serving Milton, Georgetown and Acton in Halton Region. Tony provides education and support to the families, caregivers and loved ones of youth and young adults experiencing a first episode of psychosis.